THE PATIENT WHO CHANGED MY LIFE A Wising Up Web Anthology PART II: BOUNDARIES
KATHLEEN M. KELLEY
CLAY
When Monica places the baby
ceremonially in my arms, Amy locks her knees like gates and quickly positions
herself so she can stand up in my lap and face out. She wears a red jumper, a
white blouse, long striped athletic sox in bright shades of blue and purple,
and a tiny pair of sneakers the color of goldenrod. She is four months old. Her
two moms and I sit down on hard dark chairs and a couch in the conference room
in the hospital's radiation oncology department. It is five months since the
September 11 terrorist attacks, the day before Valentine's Day. I love holding
her, love her vanilla bean smell and the bald spot on the back of her head, but
feel a little distracted from the careful listening I want to do.
Grace, Amy's other mom, is my
patient. Today she wears an oversized t shirt with an American flag on front in
the shape of a huge heart. She tells me what I already know, that she is no
longer in remission. Not only is the cancer still in her lungs, it is also in
her liver and her brain. She has resumed chemotherapy, a protocol less toxic
than the one she endured when Monica was pregnant. Grace insists that Dr.
Mannan be completely honest with her, so she knows there is only a ten per cent
chance shewill be alive a year
from now.
When I comment on the sadness
that must permeate their lives, Grace's reply surprises me. "To tell you
the truth," she says, "I have never been so happy, so much at
peace."Indeed, her face
shines. Her disability application has been approved, she is building a high
chair in her basement for Amy, and her mother's upcoming visit will end a long
period of estrangement between them. Not only that, but they have just mailed
paper work that will make Amy Grace's legally adopted child. The baby bounces
on my lap with her knees still locked.
Grace is recording her
reflections in three keepsake notebooks: one for her mother, one for Monica,
and one for Amy. The one for Amy is composed of letters she wants Amy to read
when the time is right: Starting School, Getting Your Period, Falling in Love,
Figuring Out About Alcohol, Leaving Home. In braver moments, she is working on
a piece called The Mom You Don't Remember, as well as her personal reflections
on dying.
Monica reaches into the diaper
bag and brings out a round, dark green wooden box. It is painted in tiny pink
flowers curled tightly at the tips of their long, graceful stems. We go ahead
with our plan to cut a ceremonial lock of Grace's hair (before any more falls
out) to put in the box, another keepsake for Amy. I have come prepared with
scissors. When I snip the lock from the back of Grace's neck, the scissors make
a bright, crisp sound. We smile. Believe it or not, we are having a good time.
I am also prepared with a package
of clay. "Is it time for this now?" I ask, and they nod. Leaving them
to wait for me, I walk to the staff lunch room. There, I cut the clay in two
with a plastic knife. Then I heat each half on a paper towel in the microwave
for a minute, until it rises like a biscuit. Slowly, I flatten each one with my
hand, patting it from the center out, as if I were rolling out a pie crust,
until I have two warm, smooth spongy pancakes.
When I return, Grace presses each
of her hands, one at a time, into the warm clay, while Monica and I look on,
smiling and pressing our own hands against hers so the impressions will be as
clear as possible. Then Monica holds the wriggling baby over the clay. I press
each of her tiny hands into the clay inside Grace's prints so that the big hand
will be holding the little one. She shrieks and balks as we hold her still,
uncurl her fingers, and press hard. The impressions are perfect. In twenty-four
hours the clay will be dry.
#
During the next year, I meet with
Grace often enough to feel quite close to her. Eventually, she becomes too sick
to come into the hospital any more. Her care is transferred to hospice. I miss
our meetings, understand how fragile she is, and decide to make a home visit. A
woman with a full face and thin lips lets me in. She is Eva, an old friend who
is taking care of Grace in the last weeks of her life, and she leads the way
upstairs to a room where Grace lies in a hospital bed. Then she discreetly
disappears. It is hot and humid in the house. Grace has no shirt on. Her
pendulous breasts rest on her stomach, as if they have just been emptied. I can
tell she is glad to see me again. She makes a little joke about being
shirtless, says she hopes it doesn't matter since we're all women. Grace is
usually very direct, so her comment does not surprise me. Still, it takes me a
moment to adjust to seeing her this way. I have never made a home visit to a
dying patient, and I have no idea what sort of professional boundary is
appropriate.
Grace seems both herself and not
herself. Much of her body has wasted away; she does her best to focus through a
fog of morphine. Still, when our eyes meet the gaze holds, and when she speaks,
her voice is the same - honest, funny, wise.
What do you say to someone who is
dying? I feel awkward, aware how little experience with this, except for my
mother's death. I ask how she is feeling and watch her face for a sign she
hears me, hoping the question does not strike her under the circumstances as
ridiculous. After a moment her face breaks out in a broad smile, and she says
she is actually doing pretty well. There is a pause, then she says that every
single face she looks into--and I especially recall her use of the word
"single"--seems full of love, and she can't imagine anything better
than that. I see in my mind the faces of the people she loves, at least the
ones I know - the baby, of course, and Monica, who must be at once both
overwhelmed and distracted by the need to make a living and take care of Alice.
Eva has come upstairs now to see
if Grace needs anything. Grace says her mouth is dry. Eva reaches for a tube of
gel and offers it to me with a question on her face. I understand she is
offering to let me put some gel on my finger and smooth it around Grace's
mouth. It is the kind of act Eva must perform a dozen times a day. I am
unprepared for the gesture, confused again about the professional boundaries
that usually apply in my work but don't seem to apply here. So I shrug my
shoulders and shake my head as if to say I don't quite understand how all this
works, which is true. Rescuing me, Eva moistens Grace's mouth with the gel,
then leaves us alone again.
I am glad for the silence that
envelops us as Grace drifts in and out of consciousness. Once in awhile she
says something that lets me know she is aware I'm still there. Once she
reassures me that she is still "there" no matter how it looks. I am
struck by how gracious she is to give me this feed-back even as she lies dying.
There is a lump in my throat and a bee in my belly. I have no idea how to be
helpful. I only know I needed to see her this one last time to say good-bye.
After a while, as if from a great
distance, Grace says she is hungry. She says this as if hunger surprises her,
tickles her in some way. I tell her I will let Eva know, then go downstairs to
ask if Eva if she can bring up something to eat.
When Eva returns I am surprised
to see that she has brought an orange, which she hands to me. Grace has shared
a lot of her writing with me, and once she wrote about oranges-- how they were
God's gift and how she loved their taste almost as much as she had once loved
alcohol, how she would hoard them as a child and eat them by the bagful.
Holding the orange in my hand, I remind Grace of the piece she wrote, which
makes her smile. She reminds me that she expects me to read it at her funeral,
which makes me smile. Then I surprise myself by asking her if she knows how to
peel an orange with a spoon. There is a twinkle in her eye as she shakes her
head no. I ask Eva if she can bring up a spoon, which she quickly does, then raises
the bed up so Grace is in a semi-sitting position.
I hold the orange up so Grace can
see it clearly. I pierce the skin with the tip of the spoon and watch as oil
poofs into the air as if from an atomizer, suffusing the air in the tight room
with a sharp fragrance. Carefully, I probe with the spoon the space between the
peel and the fruit, moving slowly in a circular fashion with an almost
ratcheting motion, the way you do when peeling an apple so the skin comes off
in a one long dancing spiral. Grace lets out a giggle, and a sigh of pleasure.
The orange is very ripe, even a little overripe, so I am making a mess. There
is juice running down my arm as I pull open the fruit and raise a piece to
Grace's open mouth. Eva helps her to lean forward. With an openhearted smile,
she takes a fragment of the fruit into her mouth where she savors it for a
moment, then utters the one word delicious.
This effort exhausts her, and
when she lies back down she seems to sink more deeply into the bed and to
retreat into a sleep that carries her away to a place I cannot go. When I kiss
her good-bye, she barely responds.
At her funeral service the next
week I bring a large basket of oranges to share. Alice plays with them on the
floor to everyone's delight, rolling them like balls.
DISCUSSION QUESTIONS
Does this story make you uncomfortable or comfortable? Do
you know why?
What boundaries are being crossed?
What new boundaries are being set?
Kathleen Kelley resides in
western Massachusetts where she lives in a co-housing community, works as a
hospice social worker, spends as much time as possible in nature, and writes
poetry, memoir, and essays.Her work has appeared in Peregrine, The
Equinox, The Sun, Many Hands, The Green Fuse,
Evergreen Chronicles, Mediphores,
and Earth's Daughters.She was the recipient of the 2008 Anderbo Poetry
Prize.